Girl, 7, dies a year after being diagnosed with deadliest childhood cancer

A girl whose brave battle with the world's deadliest childhood cancer prompted an outpouring of public support has died just a year after her diagnosis.

Edie Jackson was only six when she received the devastating news in November 2019 that she had a very rare brain tumour known as a high-grade Diffuse Intrinsic Pontine Glioma (DIPG).

Only 30 to 40 children are diagnosed with the cancer each year and the average survival prognosis is just eight to 12 months, the Mirror reports.

Edie's brave battle captured the hearts of celebrities including Made in Chelsea's Nicola Hughes, and TOWIE's Amber Dowding, who got involved with fundraising to send Edie to New York last March for costly clinical trials.

But despite raising almost £300,000 and Edie managing to undergo the intense chemotherapy in the US, the youngster lost her cancer battle on Tuesday, 14 months after her diagnosis.

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Edie's aunt Emmie Adams announced the news on the Edie's Fight Facebook page, which has almost 6,000 members.

"It is with an indescribable sadness and a deep sense of pride that we write to tell you that Edie, our Warrior Princess and the bravest girl we know, passed away, surrounded by her loving family at 5.30pm yesterday," she wrote.

"We are sad because she is no longer with us, although our seven years of beautiful memories of her will always live on, but also proud at the life she led and the legacy she left.

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"Edie united the most amazing community around a cause you all held so dear and we want to thank you all for the support and strength you have shown us – we could not have done it without you."

She went on: "Edie is forever seven. She will never be forgotten and leaves the biggest, Warrior Princess shaped hole in all our lives.

"We will take some time to begin processing this devastating news and will update on arrangements for a celebration of her life in the coming days.

"Grief leaves a heartache no one can heal, love leaves a memory no one can steal."

Edie's tumour was discovered during an MRI at Harlow's Princess Alexandra Hospital, conducted after her parents noticed she had a squint in her left eye and told doctors she had double vision.

Following the devastating diagnosis, Edie's dad Craig said the family would keep life as normal as possible for her and do whatever necessary to help her get the treatment she so desperately needed.

They were in a race against the clock to get a more effective treatment before the tumour grew again. At that time, Edie didn't know she had a brain tumour and thought she just had a poorly eye.

Edie's dad Craig told the Mirror in December 2019: "If we don't raise the money, there's no question of her not getting the treatment.

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"We will sell the house, we will sell the clothes off our backs and everything we have. We want to fight this. Every pound donated is going towards Edie's life."

He added: "To contemplate losing Edie is something that makes us feel numb whenever we think about it for too long."

Lois, an account manager, added: "It's like the end of the world, to be honest.

"One of the hardest things is that I keep asking why, what could I have done to prevent it?

"But there's nothing, she's just the one the cancer chose."

By then Edie had already undergone a gruelling course of radiotherapy to try and stunt the growth of the tumour.

The most effective treatment options for DIPG aren't available on the NHS and are very costly, with UK families who go to the US for treatment also facing expensive travel costs.

Craig said in December 2019: "There's no question about us not trying everything we can. It's not about extending her life – it's about beating the odds and getting her better.

"We want to beat this, we want Edie to get better and have the long life she deserves."

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